Thursday, May 9, 2019
Busy Thursday
A therapist came out from CCS. She was not our usual, but who was available today. She spent two hours at our house. The little man was still asleep when she got here, so she and I chatted. He woke up and then he showed her how to play some game on the phone. I gave him some space so I don't know what else was talked about.
She talked me into have a safety check even though I just had one with our home specialist from Children's Center. Theirs is a little more in depth. The first thing she said was they could help me get the curio cabinet out of the house. Afterall not all of the glass is broken yet. And it is just me, so I could use a hand. She suggested renting a uhaul truck for a dump run because some stuff needs to go.
I got an outrageous bid for replacing the front window. I was kind of shocked and felt like someone was trying to take advantage. Now I need to get some more bids. Even my neighbor whose brother is a contractor said it was way too much.
We met up with Jeremy at the Columbia Tech Park. It was a good place for kids to play. I left the little woman with him while I took the little man to see his doctor. Then I left both of them while I met up with the therapist, home specialist and the brain doctor at Children's Center.
We upped the meds the little man takes and added a break through one. So if he escalates I have a pill to give him at that time and hopefully before he is full blown because then he won't take it. The doc said to absolutely try the melatonin. So later I picked up the new prescriptions and the melatonin.
Again the little man's intelligence was talked about. The reason being is that there isn't really any cognitive dysfunction. However he has a lot of emotional stuff. And for the first time we are now talking RAD. RAD is reactive attachment disorder. I had a misunderstanding of what that is. I thought it was strictly the not bonded ever thing. But naturally there are degrees and he is bonded with me. But his brain tells him that no one can meet his needs. It was a lot to take in again.
It was reiterated that I need to take care of myself. And they know I feel stuck between a rock and a hard place. Dealing with all of this all of the time, and now no breaks, means my own brain is being affected.
I have a lot more studying to do.
Once done with all of that we came home and had pizza. Jeremy came over for a couple of hours and serenaded us with his guitar. The littles loved playing with it. The little woman has really good timing. Music is art and that does not surprise me.
Gave the little man the melatonin. It took longer than half an hour, but he was asleep by 10:15 which is the earliest it has been in weeks. Whew. On my way to join him in slumber.
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